Steven and Jeanne are married and partners in documentary film making. My local library doesn't have copies of either of their big documentaries. I'm very interested in seeing them though and will try to get my hands on them to watch.
So Much So Fast (official web site and trailer) and Troublesome Creek (on the same site). You can listen about Steven & Jeanne here. If you would rather read about them here is a good article.
Steven has written a book.
As a triathlete, I'm aware of ALS. Who can forget the story of on ABC sports of Jon Blais - The Blazeman.